As you already know, HypoPara is a challenging disease to live with. It’s important to know how to advocate for yourself by asking questions and being active in your treatment journey. Before meeting with your doctor, it may be helpful to write down all of your questions ahead of time. You can even take info that you find here on this site to your next appointment to discuss with your doctor.
Building a personal support network of your friends and family can help reduce the burden you feel as someone living with HypoPara:
Share
Talk about what it’s like living with HypoPara to help others better understand this disease.
Communicate
Let your network know how they can support you.
Educate
Share info that you think is helpful to know about HypoPara.
You can also join a community of people living with HypoPara. Advocacy groups can help you share your experiences, learn from others, and stay informed. Find out how to get involved here.
HypoPara=hypoparathyroidism; PTH=parathyroid hormone.
