As you already know, hypoparathyroidism is a challenging disease to live with. Therefore, it is important to know how to advocate for yourself by asking questions and actively participating in your treatment journey. Before meeting with your doctor, it may be helpful to write down all your questions ahead of time. You can even take information that you find here on or medical articles to your next appointment to discuss with your doctor.

Building a personal support network of your friends and family can help reduce the burden you feel as someone living with hypoparathyroidism:



Talk about what it’s like living with hypoparathyroidism to help others better understand this disease.



Let your network know how they can support you.



Share information that you think is helpful to know about hypoparathyroidism.

You can also join a community of people living with hypoparathyroidism. Advocacy groups can help you share your experiences, learn from others, and stay informed. Find out how to get involved here.

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HypoPara = hypoparathyroidism; PTH = parathyroid hormone.