Impacts of Low PTH
Hypoparathyroidism Can Reduce Well-being
Telephone interviews were conducted in a study of 42 people with hypoparathyroidism to identify the most relevant and important impacts of the disease. The interview results were used to develop a disease-specific questionnaire.
The 4 most prominent impact categories were found to be:
Psychological
well-being
Daily life
Physical
functioning
Social life and
relationships
In a study, 42 people with hypoparathyroidism reported the following:
Psychological well-being
81%
(34 people)
Feeling anxious or having anxiety
64%
(27 people)
Feeling frustrated
62%
(26 people)
Feeling depressed/sad
“I constantly worry about how this disease has taken away my life.”
— Person living with hypoparathyroidism.
Daily life
79%
(33 people)
Impaired ability to do things around the house
43%
(18 people)
Interference with work productivity
67%
(28 people)
Unable to do as much as you used to do/want to do
“It's like I never have a day off from this disease.”
— Person living with hypoparathyroidism.
Physical functioning
76%
(32 people)
Impaired ability to exercise
52%
(22 people)
Less active than you used to be/want to be
50%
(21 people)
Impaired mobility (including while walking)
“I have episodes of muscle spasms that can be debilitating to the point of limiting or stopping movement, due to tightness and pain.”
— Person living with hypoparathyroidism.
Social life and relationships
79%
(33 people)
Reduced ability to participate in social activities
57%
(24 people)
Limited in types of social activities you can participate in
43%
(18 people)
Affects relationships with family
“It takes me longer to process what others are saying and it takes longer to find the right words to say.”
— Person living with hypoparathyroidism.
You May Experience Low Well-being Despite Having Normal Lab Values
In a clinical study, nearly 50% of people with hypoparathyroidism had normal blood calcium levels—yet reported low well-being*†
*Low well-being was defined as a score of < 80 on a scale of 0 to 100 on the EQ5D-VAS questionnaire, where a score of 0 is associated with the lowest well-being and 100 with the highest well-being.
†A study identified 203 people with hypoparathyroidism in Sweden from 2007 to 2020, and health-related quality of life was rated in 106 of those people using validated questionnaires. (Of the 203 study participants, 74% were taking calcium and 82% were taking active vitamin D.)
Use these 3 quick and easy tips for navigating life with HypoPara
Read more >
Your HypoPara may not
be fully addressed
Signs to look for
EQ5D-VAS = EuroQoL-5 Dimensions Visual Analogue Scale; HypoPara = hypoparathyroidism; PTH = parathyroid hormone.
