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HypoPara Life Impacts Assessment

Impacts of Low PTH

Woman with HypoPara doing yoga Woman with HypoPara doing yoga

Hypoparathyroidism Can Reduce Well-being

Telephone interviews were conducted in a study of 42 people with hypoparathyroidism to identify the most relevant and important impacts of the disease. The interview results were used to develop a disease-specific questionnaire.

The 4 most prominent impact categories were found to be:

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Daily life

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Social life and

In a study, 42 people with hypoparathyroidism reported the following:

Daily life
Social life
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Psychological well-being


(34 people)

Feeling anxious or having anxiety


(27 people)

Feeling frustrated


(26 people)

Feeling depressed/sad

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I constantly worry about how this disease has taken away my life.”

— Person living with hypoparathyroidism.

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Daily life


(33 people)

Impaired ability to do things around the house


(18 people)

Interference with work productivity


(28 people)

Unable to do as much as you used to do/want to do

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It's like I never have a day off from this disease.”

— Person living with hypoparathyroidism.

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Physical functioning


(32 people)

Impaired ability to exercise


(22 people)

Less active than you used to be/want to be


(21 people)

Impaired mobility (including while walking)

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I have episodes of muscle spasms that can be debilitating to the point of limiting or stopping movement, due to tightness and pain.”

— Person living with hypoparathyroidism.

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Symptoms of hypoparathyroidism may be difficult to identify and lab test results may not accurately reflect how patients feel.

You May Experience Low Well-being Despite Having Normal Lab Values

In a clinical study, nearly 50% of people with hypoparathyroidism had normal blood calcium levels—yet reported low well-being*†

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*Low well-being was defined as a score of < 80 on a scale of 0 to 100 on the EQ5D-VAS questionnaire, where a score of 0 is associated with the lowest well-being and 100 with the highest well-being.

A study identified 203 people with hypoparathyroidism in Sweden from 2007 to 2020, and health-related quality of life was rated in 106 of those people using validated questionnaires. (Of the 203 study participants, 74% were taking calcium and 82% were taking active vitamin D.)

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The daily impacts of the disease may not be addressed by active vitamin D and calcium.

Use these 3 quick and easy tips for navigating life with HypoPara

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Your HypoPara may not
be fully addressed

Signs to look for

EQ5D-VAS = EuroQoL-5 Dimensions Visual Analogue Scale; HypoPara = hypoparathyroidism; PTH = parathyroid hormone.