“We also have to be willing to do things to help ourselves…With the brain fog, my memory’s not what it used to be, and I have to work more at remembering things.”
Impacts of Low PTH
HypoPara Can Affect Your Well-Being
Telephone interviews were conducted in a study of 42 people living with HypoPara to identify the most accurate and important impacts of the disease in order to create a disease-specific questionnaire.
HypoPara has a great impact on:
Mental well-being
Daily life
Activity
Social life and
relationships
relationships
Mental well-being
81%
felt anxious or had anxiety
64%
felt frustrated
62%
felt depressed
or sad
“The one thing I tell people is, do what you can when you can and never quit.”
— Curt, living with HypoPara. Compensated by Ascendis Pharmaceuticals.
Daily life
79%
were not able to do as many things around the house
43%
said that HypoPara interferes with their ability to work
67%
were unable to do as much as they used to do/want to do
”The one thing I tell people is, do what you can when you can and never quit.“
— Curt, living with HypoPara. Compensated by Ascendis Pharmaceuticals.
Activity
76%
were not able to exercise in the same way
52%
are less active than they used to be/want to be
50%
were not as mobile (including while walking)
”The one thing I tell people is, do what you can when you can and never quit.“
— Curt, living with HypoPara. Compensated by Ascendis Pharmaceuticals.
Social life and relationships
79%
were less able to engage in social activities
57%
were more limited in the types of social activities they could do
43%
said this affected their relationships with family
”The one thing I tell people is, do what you can when you can and never quit.“
— Curt, living with HypoPara. Compensated by Ascendis Pharmaceuticals.
You May Not Feel Your Best, Even if Your Lab Tests Say
Otherwise
In a clinical study, almost half of people with HypoPara had normal blood calcium levels—yet reported low well-being.*†
*Low well-being was defined as a score of <80 on a scale of 0 to 100 on the EQ5D-VAS questionnaire, where a score of 0 is associated with the lowest well-being and 100 with the highest well-being.
†A study identified 203 people with hypoparathyroidism in Sweden from 2007 to 2020, and health-related quality of life was rated in 106 of those people using validated questionnaires. Of the 203 study participants, 74% were taking calcium and 82% were taking active vitamin D.
Use these 3 quick and easy tips for navigating life with HypoPara
Read more >
Curt, living with HypoPara.
Compensated by Ascendis Pharmaceuticals.
Learn how to control your symptoms
Discover moreEQ5D-VAS=EuroQoL-5 Dimensions Visual Analogue Scale; HypoPara=hypoparathyroidism; PTH=parathyroid hormone.
